ICPCN – INTERNATIONAL CHILDREN’S PALLIATIVE CARE NETWORK

The ICPCN is the only international organisation that networks individuals and organisations that work in children’s palliative care.  We share a vision that the total needs of life-threatened or life-limited children should be met to encompass physical, emotional, spiritual and developmental aspects of care.  Our mission is to achieve the best quality of life and care for children and young people with life-limiting conditions, their families and carers worldwide, by raising awareness of children’s palliative care, lobbying for the global development of children’s palliative care services, and sharing expertise, skills and knowledge. We believe that no child with a life-limiting condition should suffer unnecessarily and that palliative care is a professional and compassionate response to a child’s suffering.

The core objectives of the ICPCN are:

  • Information
  • Networking
  • Advocacy
  • Research
  • Education

Information

The ICPCN provides a comprehensive information service on children’s palliative care which includes an online directory of services. It disseminates up-to-date information via multimedia platforms including a website, a Facebook page and weekly editions of eHospice. It responds promptly to all inquiries related to children’s palliative care.

 Networking

We promote collaboration between individuals and organisations working in children’s palliative care. We also work together with national and international palliative care organisations in order to integrate children’s palliative care into their programmes and strategic activities.

 

Advocacy

The ICPCN provides a strong global voice for children’s palliative care through advocacy to influential global, regional and national bodies and decision makers. We identify and support national champions of children’s palliative care and encourage and invite reputable public figures to be ambassadors for the organisation.

Education

The ICPCN offers international learning opportunities through its e-learning courses as well as providing face to face training, workshops and master classes on children’s palliative care. We promote and provide guidance for the integration of education of children’s palliative care into mainstream health education.

Research  

The ICPCN Scientific Committee works to grow the children’s palliative care knowledge base through research and through identifying and prioritising specific research areas to support the ICPCN strategy and demonstrate best practice models of care.

www.icpcn.org.uk

OTHER SHORTFILMS

Little Stars – UK Hospice Going Global

Little Stars – UK Hospice Going Global

This week we are pleased to be supporting the release of a short film that encourages sharing skills and knowledge of children’s palliative care internationally. This film explains what we can learn together by international linking and...

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Matteo’s Story – Care Beyond Cure

Matteo’s Story – Care Beyond Cure

Care Beyond Cure – Ondine's Syndrome “One of the things I remember when we first met Matteo was the phrase ‘we are giving you a baby who is alive’ that phrase meant everything and nothing, it meant that Matteo could die at anytime. Children...

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Marmaduke’s Story – Childhood Cancer

Marmaduke’s Story – Childhood Cancer

“When you realize how uncertain life is , you do begin to appreciate the value or family and friendships and enjoy those moments while you have them because you don’t know what’s around the corner,” Simon Waring. Marmaduke’s Story highlights...

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Kali’s Story – Beyond The NICU

Kali’s Story – Beyond The NICU

"The term palliative care often is perceived by some of my colleagues and some parents as giving up hope or working with the death-and-dying squad.  What they may not understand is that clearly using palliative care means that kids actually...

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