LITTLE STARS MALAYSIA

What an amazing week we’ve just had in Malaysia filming for Little Stars!  Not only did Hospis Malaysia play fabulous hosts to us, introducing us to some of their wonderful patients in Kuala Lumpur but we also had the enormous privilege of meeting Malaysian Royalty when we traveled to Johor Bahru to film at the Pediatric Palliative Care ward in Hospital Sultan Ismail.

A visit by Her Royal Highness Raja Zarith Sofiah Idris, the Royal Patron of the Malaysian Paediatric Palliative Care Programme was arranged for the day of our filming.  Her Royal Highness plays an important, ongoing role in advocating for implementation and improved services for paediatic palliative care in Malaysia.  It was a pleasure to meet her and witness the joy and excitement the children on the ward had at the opportunity to meet her.

LITTLE STARS MALAYSIA

Over the coming months we’ll be sharing more from our time in Malaysia.  We have some amazing stories to share including Nami, a 15 year old boy with Spinal Muscular Atrophy who won gold at the Malaysian Youth Paralympic Games playing Chess and has now mastered ‘Blind’ chess in order to further challenge himself, although he has his full site.  And Linges, a young girl with a neuromuscular disorder who despite being wheelchair bound and reliant on a BiPap machine which assists her breathing attends school everyday and aspires to be a fashion designer.

Their stories are inspirational and we look forward to presenting them to you.   Please join our the Little Stars mailing list to receive updates.

OTHER NEWS

Dreams are the stuff that hope is made of

Dreams are the stuff that hope is made of

Guest Blog by Ednin Hamzah, CEO/Medical Director Hospis Malaysia Dreams are the stuff that hope is made of. And talking to the children that we are involved with gives us an insight into the dreams that they have. In listening to Linges as...

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For there is still such a lot to do

For there is still such a lot to do

Guest Blog by Gail Featherstone Gail Featherstone is the wife of the former British High Commissioner to Malaysia His Excellency Simon Featherstone CMG. Gail authored the delightful children’s book ‘Mr Monty’s Treat’ with proceeds from the...

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Great Ormond Street Hospital Testimonial

Great Ormond Street Hospital Testimonial

'Charlie's Story' in The Louis Dundas Centre's, Paediatric Palliative Care Foundation Programme, Great Ormond Street Hospital The Louis Dundas Centre at Great Ormond Street Hospital is a world-class centre of research, teaching and clinical...

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Palliative Care Australia

Palliative Care Australia

Guest Blog by Liz Callaghan - CEO Palliative Care Australia The Little Stars project shows children all over the world at their most vulnerable. Regardless of where they are, the thing that shines through in these films is the unconditional...

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Little Stars – A Dinosaur’s Tail

Little Stars – A Dinosaur’s Tail

Guest Blog by Simon Waring A Dinosaur’s Tail: Marmaduke at the Royal Children’s… A dinosaur’s tail seems a frivolous detail to remember about my four-year old son’s Palliative Care, and yet it epitomizes the gentle approach of the Royal...

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So much more than end-of-life care

So much more than end-of-life care

Guest Blog by Janice Eason Kali would not be here today if it would not have been for the help of her pain and palliative care team.  They have been with her since the beginning and are still a part of her life today.  The work they do is so...

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Hope for the Best, Prepare for the Worst

Hope for the Best, Prepare for the Worst

Guest Blog by Dr Stefan Friedrichsdorf Pediatric Palliative Care is making sure that children facing a serious illness can live as long as possible, as well possible. While we hope for the best, we prepare for the worst. Pediatric palliative...

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