“Paediatric palliative care in its essence is a response to the suffering of a child and a family who are facing life-threatening or life-limiting conditions It’s holistic, looking at the body, mind and spirit within the social and cultural context. It cares for the child from the time of diagnosis until death, and after death it does bereavement support for the family ” Joan Marston.
This Accolade Award-winning short film introduces us to the paediatric (pediatric) palliative care and children’s hospice. It features Joan Marston (international Children’s Palliative Care Network) and the staff and children of Sunflower House in Bloemfontein, South Africa. (more…)
Why should children suffer?
“In all parts of the world, tragically, there are children who are going to have short lives and in many parts of the world those children are going to die in pain and with other distressing symptoms,” Sister Frances Dominica.
Regrettably, not all conditions can be cured. However, many children with life-limiting conditions will live for years, if not decades. Currently, 20 Million children around the world can benefit from palliative care, but access to services remains an issue (ICPCN). (more…)
Life is short, value every moment.
Little Stars is tells the surprisingly life-affirming stories of young people around the world living with life-limiting illnesses. Against the odds, these children and young adults are making the most of every moment thanks to the support of their loved ones, working in harmony with passionate ‘pain and palliative care’ teams. (more…)
ICPCN – INTERNATIONAL CHILDREN’S PALLIATIVE CARE NETWORK
The ICPCN is the only international organisation that networks individuals and organisations that work in children’s palliative care. We share a vision that the total needs of life-threatened or life-limited children should be met to encompass physical, emotional, spiritual and developmental aspects of care. Our mission is to achieve the best quality of life and care for children and young people with life-limiting conditions, their families and carers worldwide, by raising awareness of children’s palliative care, lobbying for the global development of children’s palliative care services, and sharing expertise, skills and knowledge. We believe that no child with a life-limiting condition should suffer unnecessarily and that palliative care is a professional and compassionate response to a child’s suffering.
SUN FLOWER CHILDRENS HOSPICE
BLOEMFONTEIN , SOUTH AFRICA
Sunflower Children’s Hospice was established 15 years ago as a response to the increasing number of children with HIV and AIDS at that time, as well as many children with a variety of life-limiting conditions.
The Hospice has cared for over 5 000 children in this time through home-based care; Day care and care in Sunflower House. It works closely with the District Hospital ; and provides a variety of training courses for families, professionals, primary carers and community caregivers.
Short Film 1 – ‘Value Every Life’ introduces us to children’s palliative care and hospice. It features Joan Marston, Chief Executive of the International Children’s Palliative Care Network, and the staff and children of Sunflower House in Bloemfontein, South Africa.