Palliative Care & Cerebral Palsy – Nadia’s Story
Please consider supporting the important work of the Russian Children’s Palliative Care Foundation www.rcpcf.ru
In Moscow, Russia we meet Svetlana Selyukova, Nadia’s Sister “I think we have a regular sisterly relationship. She is annoying, I am annoying. So of course we have conflicts, like everybody else.” She tells us, “we live normally, you know. She’s naughty, but I think that runs in the family. She is very calm, especially if you compare her to other children, she listens and really loves to educate herself.” (more…)
Calvin’s Story – Children’s Hospice
“I’m so desperate for Calvin to get his independence and try to be a normal boy as much as he can,” reflects Maureen Muteesa from London, the mother of 8 year old Calvin who is living with a serious illness.
Calvin’s Story demonstrates the enormous positive impact that children’s hospice can have on the lives of children living with serious illnesses and their families.
Twinkle Twinkle Little Star – David Suchet
This short film, narrated by acclaimed British actor David Suchet CBE, communicates some of the key principles of children’s palliative care. Regrettably, not all children are blessed with the gift of good health.
In fact, there are over twenty million children around the world who have been diagnosed with potentially life-limiting conditions.
Little Stars Greece Crowdfunding Campaign
Little Stars is a film project told through the voices of young people and their families. It showcases the stories of children and young people accomplishing the extraordinary in the face of serious illness. This UNIVERSAL ISSUE touches families everywhere and we’ve seen for ourselves that children’s palliative care services can be effectively delivered even in very low-resource settings.
By traveling the project to Greece to film with the incredible team at Merimna led by Danai Papadotu we hope to increase support for their services which provide such a critical support to families with children suffering life-limiting illnesses in Greece. Currently, Merimna is facing the prospect of closing one or more of it’s services due to a lack of funding. (more…)
Little Stars – UK Hospice Going Global
This week we are pleased to be supporting the release of a short film that encourages sharing skills and knowledge of children’s palliative care internationally. This film explains what we can learn together by international linking and collaboration.
Dame Cicely Saunders had a global vision: that palliative care should become part of mainstream health care and that its principles and skills should be adapted to local settings and cultures. (more…)
Matteo’s Story – Care Beyond Cure
Care Beyond Cure – Ondine’s Syndrome
“One of the things I remember when we first met Matteo was the phrase ‘we are giving you a baby who is alive’ that phrase meant everything and nothing, it meant that Matteo could die at anytime. Children born with Ondines syndrome do not have the cerebral impulse to breath.” Antonella Zamboni, Matteo’s Adoped Mother.