Benedikt’s Story – Music and Children’s Palliative Care
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Benedikt lives in Speyer, Germany with his parents. He has a great passion for music and loves playing drums. Through his involvement with Kinderhospiz-Sterntaler he’s had opportunity to pursue his passion as the hospice provide space for him to play and have even arranged for his idol, pop star Daniele Negorni to jam with him. This wish fulfillment has been a dream come true for Benedikt and inspires him to go on playing despite his debilitating and complex heath issues. The connection as also inspired Daniele and he has now become an ambassador for Children’s Hospice.
Shaden’s Story – Social Support for Cancer Patients
Shades lives with her family in Amman, Jordan. At 13 years old she has already endured years of treatment and recovery from childhood Leukemia. Through children’s palliative care she has found strength and connection with others. Shaden loves to sing and activities with the Jordan Palliative Care and Pain Management Society have given her opportunities to perform in public.
Lucy’s Story – Art and Children’s Palliative Care
Lucy is a teenager living with her family in Munich, Germany. People say her art is exceptional, and indeed it is, not only does it look wonderful but she has the added challenge of having to hold her brush in her mouth to paint. Lucy has SMA and very limited mobility but through painting she is able to express herself and it gives her great pleasure.
Faith and Dying – Joshua’s Story
“Just never give up hope, there will always be miracle happen, I will not give up hope on him, never.” Yoong Teck Chin
In Kuala Lumpur, Malaysia we meet Yoong Teck Chin, Joshua’s mother. “When he was small he was so adorable, so chubby and so cute you know, I don’t know how to express.. but we love him so much. We came to know his biological mother when she was 8 months pregnant and at the time my husband and I were quite active in Church work. We were quite active in mission work, we thought maybe we might be able to help her. We never think of adoption of Joshua but she told me she wanted to give him away, give Joshua away.
Treating Chronic Pain in Children
“Taking pain away is not really rocket science, it’s not that difficult. If we can teach any residence, any junior doctors in one or two hours to manage 90% of children with acute pain. However most children’s hospitals have not yet implemented even the standard methods of taking acute pain away.” Dr Stefan Friedrichsdorf, Children’s Pain Expert.
In Minneapolis, USA we meet Dr Stefan Friedrichsdorf and his inter disciplinary team and learn what chronic pain in children means and how chronic pain is treated in their unique pain clinic.
Nazmi’s Story – Prospering with a Genetic Disorder
Read an update from Nazmi here
“I honestly feel that there is no need for euthanasia at all. I think it is looking at suffering and end of life care in entirely the wrong way. There are many, many solutions in suffering and euthanasia is perhaps a cop-out”. Dr Edmin Hamzah, Medical Director Hospis Malaysia
“Sometimes people just concentrate too much on the downside of things and we forget that Nazmi is doing a lot of incredible things and we should support him through that.” Dr Leeai Chong, Palliative Care Doctor.