CHILDREN’S PALLIATIVE CARE IN THE UK
Guest Blog by Barbara Gelb
I am writing this BLOG fresh (or not so fresh!) from a TV appearance doing a virtual cycle ride from London to Lapland for a major Christmas charity appeal here in the UK.
The profile of children’s palliative care has never been higher, but there is still so much more to do to reach all of the UK’s 49,000 babies, children and young people with a life-limiting condition.
Launch of the Little Stars Project
Guest Blog from Joan Marston
It has been such a delight to meet up with friends and colleagues from all over the world, here in beautiful Roma but here not to spend all their time visiting the ancient and wonderful sites of this amazing city, but because they care about children with life-limiting conditions. It is a sobering thought that while we are excited to be together, to learn and to share our experiences, there are over 20 million children and families battling with the day to day challenges that such illnesses bring into their lives.
Little Stars – Childhood Epilepsy – Joseph’s Story
We have just released Joseph’s Story as part of our Little Stars Indiegogo crowd funding campaign.
About Joseph’s Story by Fiona Stewart
“The most surprising thing I have learnt about paediatric palliative care is that it is not just about endings. Palliative care is really a steady arm to lean on: it supports you to make your time together the best it can be, and it helps families take some control back over their lives.
DAVID SUCHET STARS IN LITTLE STARS
Thanks to the tremendous support of the first 75 Funders of the Little Stars Indiegogo Campaign we have been able to record the narration for the one-hour feature film with acclaimed, award-winning British actor David Suchet CBE (most famous for his portrayal of Agatha Christie’s Poirot).
THANK YOU!!! Check out a sample of David’s performance by watching the updated campaign video now…
LITTLE STARS INDIEGOGO CAMPAIGN – WE NEED YOU
ARTICLE COURTESY OF SUE BOUCHER @ E-HOSPICE
The makers of “Little Stars” the full length movie and short feature films on children’s palliative care have started a crowdfunding appeal to get them to the finish line in time for the film premiere at the World Cancer Congress in Melbourne this December.
We have spent an amazing week in Padova, Italy. Our hosts The Maruzza Foundation and Hospice Pediatrico Casa del Bambino were fantastic and enabled us to film with some incredible children and their families who are receiving support from the palliative care team at the hospice.
The work being done by the team at Casa del Bambino is exemplary. Currently it is the only paediatric hospice in Italy.
Matteo is an energetic seven year old. An extraordinary family who took him on despite his life threatening illness, (more…)