Why should children suffer?
“In all parts of the world, tragically, there are children who are going to have short lives and in many parts of the world those children are going to die in pain and with other distressing symptoms,” Sister Frances Dominica.
Regrettably, not all conditions can be cured. However, many children with life-limiting conditions will live for years, if not decades. Currently, 20 Million children around the world can benefit from palliative care, but access to services remains an issue (ICPCN).
WHY SHOULD CHILDREN SUFFER?
Children are particularly at risk of inadequate pain management due to age related factors, limited access to essential medicines and misconceptions about how to effectively treat their pain. These vulnerable children and families are suffering. They are largely invisible. But for those who are receiving care, the results are extraordinary.
Children’s palliative care is a response to the suffering of a child and their family facing life-threatening conditions. It’s holistic, looking at the body, mind and spirit within the social and cultural context. It cares for the child from the time of diagnosis until death, and after death it does bereavement support for the family.
These remarkable stories show young people finding hope, love, joy and attainment in the face of the inevitable.
“Governments all around the world should wake up and recognise the needs of these children,” Barbara Gelb.
Featuring Sister Frances Dominca, Brabara Gelb. Dr Rasha Al Hamad, Dr John Collins, Dr Stephen Liben, Dr Anna Gohcakova, Dr Lee Ai Chong, Joan Marston, Dr Pradnya Talawadelear, Dr Rut Kiman, Silvia Lefebrvre D’Ovidio.
“Paediatric palliative care in its essence is a response to the suffering of a child and a family who are facing life-threatening or life-limiting conditions It’s holistic, looking at the body, mind and spirit within the social and cultural...read more
Life is short, value every moment. Little Stars is tells the surprisingly life-affirming stories of young people around the world living with life-limiting illnesses. Against the odds, these children and young adults are making the most of...read more
The ICPCN is the only international organisation that networks individuals and organisations that work in children’s palliative care. We share a vision that the total needs of life-threatened or life-limited children should be met to...read more
BLOEMFONTEIN , SOUTH AFRICA Sunflower Children’s Hospice was established 15 years ago as a response to the increasing number of children with HIV and AIDS at that time, as well as many children with a variety of life-limiting conditions. The...read more
Short Film 1 - 'Value Every Life' introduces us to children's palliative care and hospice. It features Joan Marston, Chief Executive of the International Children’s Palliative Care Network, and the staff and children of Sunflower House in...read more