Why should children suffer?
“In all parts of the world, tragically, there are children who are going to have short lives and in many parts of the world those children are going to die in pain and with other distressing symptoms,” Sister Frances Dominica.
Regrettably, not all conditions can be cured. However, many children with life-limiting conditions will live for years, if not decades. Currently, 20 Million children around the world can benefit from palliative care, but access to services remains an issue (ICPCN).
WHY SHOULD CHILDREN SUFFER?
Children are particularly at risk of inadequate pain management due to age related factors, limited access to essential medicines and misconceptions about how to effectively treat their pain. These vulnerable children and families are suffering. They are largely invisible. But for those who are receiving care, the results are extraordinary.
Children’s palliative care is a response to the suffering of a child and their family facing life-threatening conditions. It’s holistic, looking at the body, mind and spirit within the social and cultural context. It cares for the child from the time of diagnosis until death, and after death it does bereavement support for the family.
These remarkable stories show young people finding hope, love, joy and attainment in the face of the inevitable.
“Governments all around the world should wake up and recognise the needs of these children,” Barbara Gelb.
Featuring Sister Frances Dominca, Brabara Gelb. Dr Rasha Al Hamad, Dr John Collins, Dr Stephen Liben, Dr Anna Gohcakova, Dr Lee Ai Chong, Joan Marston, Dr Pradnya Talawadelear, Dr Rut Kiman, Silvia Lefebrvre D’Ovidio.
Lucy is a teenager living with her family in Munich, Germany. People say her art is exceptional, and indeed it is, not only does it look wonderful but she has the added challenge of having to hold her brush in her mouth to paint. Lucy has...read more
"Just never give up hope, there will always be miracle happen, I will not give up hope on him, never." Yoong Teck Chin In Kuala Lumpur, Malaysia we meet Yoong Teck Chin, Joshua's mother. "When he was small he was so adorable, so chubby and...read more
"Taking pain away is not really rocket science, it’s not that difficult. If we can teach any residence, any junior doctors in one or two hours to manage 90% of children with acute pain. However most children’s hospitals have not yet...read more
Read an update from Nazmi here “I honestly feel that there is no need for euthanasia at all. I think it is looking at suffering and end of life care in entirely the wrong way. There are many, many solutions in suffering and euthanasia is...read more
Please consider supporting the important work of the Russian Children’s Palliative Care Foundation www.rcpcf.ru In Moscow, Russia we meet Svetlana Selyukova, Nadia’s Sister “I think we have a regular sisterly relationship. She is annoying, I...read more
"I'm so desperate for Calvin to get his independence and try to be a normal boy as much as he can," reflects Maureen Muteesa from London, the mother of 8 year old Calvin who is living with a serious illness. Calvin's Story demonstrates the...read more
This short film, narrated by acclaimed British actor David Suchet CBE, communicates some of the key principles of children's palliative care. Regrettably, not all children are blessed with the gift of good health. In fact, there are over...read more
Little Stars is a film project told through the voices of young people and their families. It showcases the stories of children and young people accomplishing the extraordinary in the face of serious illness. This UNIVERSAL ISSUE touches...read more