Romance & Rare Disease – Alexandra’s Story

Filmed in Athens, Greece, the ‘Alexandra’s Story- Romance & Rare Disease’  short film is part of the Little Stars film series and we are grateful to all those who supported the crowdfunding campaign to make filming this story possible.

“Alexandra is, first of all, is a strong willed child.” Stavros, Alexandra’s father tells us.

Xanthi, Alexandra’s mother tells us “Alexandra is a tough child, she has a lot of strength and does not want to show it. She also has several sensitivities, she tends to make fun of whatever happens and see its comic side”

“Despite her problems she enjoys doing things. This gives us pleasure and we try as much as we can, to encourage it.” Stavros tells us.

Stavros “The truth is that “we” reached the present condition, very gradually. This was helpful to our adjustment. It was something that began when she was 2 years old, and deteriorated when she was about 10 or 11. She is 17 now. It was easier to adjust to the situation. It wasn’t abrupt or unfamiliar.

For us this has had its importance. It is also a matter of personality, mainly Alexandra’s, who actually gives us the courage and the motivation to do all that we do.”

You can watch the Greek version of this film here

Please consider supporting the important work of Merimna by making a donation at www.merimna.org.gr/en/ Your donation will help them to continue providing support to children like Alexandra and her family.

Be sure to join us on social media and subscribe to the newsletter to receive project updates and news on new short films.

OTHER SHORTFILMS

Matteo’s Story – Care Beyond Cure

Care Beyond Cure – Ondine's Syndrome “One of the things I remember when we first met Matteo was the phrase ‘we are giving you a baby who is alive’ that phrase meant everything and nothing, it meant that Matteo could die at anytime. Children...

read more

Marmaduke’s Story – Childhood Cancer

“When you realize how uncertain life is , you do begin to appreciate the value or family and friendships and enjoy those moments while you have them because you don’t know what’s around the corner,” Simon Waring. Marmaduke’s Story highlights...

read more

Kali’s Story – Beyond The NICU

"The term palliative care often is perceived by some of my colleagues and some parents as giving up hope or working with the death-and-dying squad.  What they may not understand is that clearly using palliative care means that kids actually...

read more

Value Every Life

“Paediatric palliative care in its essence is a response to the suffering of a child and a family who are facing life-threatening or life-limiting conditions  It’s holistic, looking at the body, mind and spirit within the social and cultural...

read more
Page 3 of 41234
Subscribe to Little Stars and receive regular news updates!
Your Information will never be shared with any third party.