Living with Cystic Fibrosis – LeeAnne’s Story

“I was just told I have six months to two years to live. I don’t feel that way right now, and I don’t look that way.” These words from 33-year old LeeAnne explain her personality and outlook better than any others.


LeeAnne is from Boston, USA and was diagnosed with Cystic Fibrosis when she was two years old, since then her condition has worsened to the point of being inevitably terminal, but nonetheless LeeAnne is determine to persevere.

Her struggle with Cystic Fibrosis has not been easy, however. Throughout her life, LeeAnne has been forced to deal with many issues ranging from her constant pain and additional problems caused by osteoporosis, to social stigma and emotional pain stemming from her condition.

Throughout all of this, LeeAnne has still found the strength to keep living the life that she wants to live, even going so far as to do things that her doctors told her she would never be able to do with an illness like Cystic Fibrosis, like having a child. Bailey, now 14, is her constant source of inspiration and motivation to push through.

This film explores the extraordinary life that LeeAnne has achieved against the odds, and looks at the ongoing support she has received from her pain and palliative care team, and especially from her family and friends.

Please consider giving to Pediatric Advanced Care Team (PACT) at Boston Children’s Hospital.  Contributions can be made at  – under Donation Designation enter PACT. Or mail checks, payable to Boston Children’s Hospital – add PACT in the memo field, to Boston Children’s Hospital Trust, 401 Park Drive Suite 602, Boston, MA 02215-5301.”

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– LeeAnne Curran
– Dr Richard Goldstein
– Curly the Pug



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