Faith and Dying – Joshua’s Story

“Just never give up hope, there will always be miracle happen, I will not give up hope on him, never.” Yoong Teck Chin

In Kuala Lumpur, Malaysia we meet Yoong Teck Chin, Joshua’s mother.  “When he was small he was so adorable, so chubby and so cute you know, I don’t know how to express.. but we love him so much.  We came to know his biological mother when she was 8 months pregnant and at the time my husband and I were quite active in Church work.  We were quite active in mission work, we thought maybe we might be able to help her. We never think of adoption of Joshua but she told me she wanted to give him away, give Joshua away.

When he was born he was a healthy baby, we thought we just try our best to raise him, to provide whatever we can we didn’t know that he was having those, what you say life threatening illness until later that we found that he’s slow in learning so we brought him to see doctor.  Doctor discribed him as a global development delay.  And later on we found out that at the age

of 7 or 8 his health deteriorating, he’s beginning to have epilepsy and things like that and we try our very best to find out what the cause, what is the reason of it, so we sent his blood sample over to Australia and they found that he is actually diagnosed with MECP2 duplication syndrome.”

“There is no treatment for this kind of illness, there is no treatment at all even in overseas. When we take him to the hospital they are like just.. give up on him.  I remember one time and he was very sick the doctor even refused to send him to ICU, I feel so bad when he say that but I’m glad that I have my faith.  So they tried to convince me to just …just accept what he is.  I never give up.”

Featuring
– Yoong Teck Chin
– JoshuaDr Ednin Hamzah

 

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