Marmaduke’s Story – Childhood Cancer
“When you realize how uncertain life is , you do begin to appreciate the value or family and friendships and enjoy those moments while you have them because you don’t know what’s around the corner,” Simon Waring.
Marmaduke’s Story highlights the importance of holistic care for all members of families containing children living with potentially life-limiting illnesses. We hear the first hand account of family members reflecting on the importance of children’s palliative care, including home-based care and effective pain control for childhood cancer patient Marmaduke from Melbourne, Australia.
Marmaduke was diagnosed with childhood cancer at 15 months of age. Marmaduke was treated with chemotherapy for 3-4 cycles followed by surgery at the Royal Children’s Hospital – the treatment ultimately ended with ‘sledgehammer chemo’. After 10 months Marmaduke was declared “in the clear”. Three months later, during a family holiday, Marmaduke’s mother Millsom found a lump of her breast and was diagnosed with breast cancer. Four days before Millsom finished chemotherapy, Marmaduke relapsed with presentation of an aggressive tumor.
“We decided to live in the moment and bring him home and he spent four or five months having a fantastic time,” Simon Waring.
CHILDHOOD CANCER & CHILDREN’S PALLIATIVE CARE
When Marmaduke’s condition became terminal., home-based palliative care and the effective treatment of his pain became critically important.
“The only way I could get him home was with palliative care… The end of his journey, to have him at home in his bedroom with all his own colors, his own toys, his sounds, have his brothers climbing in an out of his bed – it was as normal an environment as he could possibly have,” Simon Waring.
The strong pain relief Marmaduke received at home was essential to his quality of life.
“It was almost natural for me to be with him every second,” Charlotte Lang-Waring.
Childhood Cancer featuring Simon Waring, Charlotte Lang-Waring.
Filmed in Melbourne, Australia. Deep thanks to Simon Waring, Charlotte Lang-Waring and Palliative Care Australia.
Please consider supporting the life-changing work of Palliative Care Australia.
This week we are pleased to be supporting the release of a short film that encourages sharing skills and knowledge of children’s palliative care internationally. This film explains what we can learn together by international linking and...read more
Care Beyond Cure – Ondine's Syndrome “One of the things I remember when we first met Matteo was the phrase ‘we are giving you a baby who is alive’ that phrase meant everything and nothing, it meant that Matteo could die at anytime. Children...read more
Hope and Hyperinsulinism in infants “Don’t be afraid that things like this happen, I believe that every obstacle that is given to you in life is there so you can overcome it and become stronger.” Lana Krupenrova, Anastassia’s Mother....read more
Thriving with Thalassemia Major "I believe it's the quality of life, it doesn't matter how long I may live, but if I live well, I would have lived well. I believe these children also think the same way and want fun, want enjoyment, want...read more
"Just the sheer fact that someone as high profile as HRH Raja Zarith or HRH The Duchess of Cambridge are both serious and passionate about this movement automatically makes it a subject worth discussing." Gail Featherstone, Wife of the...read more
"The term palliative care often is perceived by some of my colleagues and some parents as giving up hope or working with the death-and-dying squad. What they may not understand is that clearly using palliative care means that kids actually...read more
“The death of a child is considered the worst loss you can go through and I think that’s particularly true of the families I’ve worked with ” Natasha Samy, Social Worker & Bereavement Counsellor. This short film tells the story of...read more
“Paediatric palliative care in its essence is a response to the suffering of a child and a family who are facing life-threatening or life-limiting conditions It’s holistic, looking at the body, mind and spirit within the social and cultural...read more