THE PROGRESS OF PAEDIATRIC PALLIATIVE CARE

Guest Blog by Sister Frances Dominica

The greatest tragedy any family can face is the death of a beloved child. It can and does happen in every part of the world, it always has and always will. The way in which society copes with such an event varies from culture to culture. Families have often felt alone in this tragedy, whether in the setting of a state of the art intensive care unit or on a pavement in a slum city.

THE PROGRESS OF PAEDIATRIC PALLIATIVE CARE, ITS OPPORTUNITIES AND CHALLENGES

The development of paediatric palliative care and its gradual spread across all continents seeks to address that experience of isolation. Along with significant progress in symptom control, there is the recognition that, although we may not be able to halt the progress of the child’s condition and death may be the inevitable outcome, there is still something we can do. We may not claim to have answers to the big questions about why such a thing should happen but we can do our utmost to encourage and enable such children to live fully until they die, free of pain and surrounded by the people they love and trust most.

We should never forget that the family knows their child better than anyone and a central part of paediatric palliative care is supporting the family, often without words, “walking the walk” with them in what may be a long, exhausting and heart-breaking journey, reassuring them that at the end of a very long dark tunnel there really is light.

Resources in many parts of the world may be scarce but there are often amazing people out there determined to make a difference.

Those of us who are privileged to work in this field are always on a steep learning curve. Our best teachers are the children and their families.

 

OTHER NEWS

Little Stars in Poland

Little Stars in Poland

We're delighted to report that Little Stars has been picked up for video-on-demand in Poland by Grupa Onet. Grupa Onet.pl is Poland’s leading online media company focusing on communication, information, entertainment, e-commerce, mobile and...

read more
Chronic Pain In Children

Chronic Pain In Children

Guest Blog by Dr Stefan J. Friedrichsdorf, Medical Director, Department of Pain Medicine, Children's Hospitals and Clinics of Minnesota "Your pain is real! You are not making it up - you are not crazy! But getting rid of it is hard work:...

read more
Life Is To Be Lived

Life Is To Be Lived

Guest Blog: Dr Chong Lee Ai, Paediatric Palliative Care, Hospis Malaysia Life is to be lived. That’s how Ahmad Nazmi keeps going. Disabilities do not hinder him from dreaming. Having a life-limiting illness does not stop him from striving to...

read more
Together for Short Lives

Together for Short Lives

Guest blog:  Lizzie Chambers.  Development Director, Together for Short Lives. There are an estimated 49,000 children and young people in the UK living with a life-threatening or life-limiting condition that may require palliative care...

read more
Children’s Palliative Care in Greece

Children’s Palliative Care in Greece

Guest Blog by Danai Papadatou I have been particularly impressed by the significant work being created through the project “Little Stars” which informs and promotes the value of pediatric palliative care for children with life limiting...

read more
A Little Magic Unit – Guest Blog in Russian

A Little Magic Unit – Guest Blog in Russian

Guest Blog from the Russian Children's Palliative Care Foundation Дела у маленькой Насти развиваются медленно, но она делает удивительные успехи. Всего лишь полгода назад врачи говорили, что она не сможет сама есть твердую пищу, а сегодня...

read more
A Little Magic Unit

A Little Magic Unit

A Little Magic Unit - A guest blog from the Russian Children's Palliative Care Foundation Things are going slow with little Anastassia but she is making incredible progress - she can eat and swallow solids today though less than a year ago...

read more
Subscribe to Little Stars and receive regular news updates!
Your Information will never be shared with any third party.