Launch of the Little Stars Project

Guest Blog from Joan Marston

It has been such a delight to meet up with friends and colleagues from all over the world, here in beautiful Roma but here not to spend all their time visiting the ancient and wonderful sites of this amazing city, but because they care about children with life-limiting conditions. It is a sobering thought that while we are excited to be together, to learn and to share our experiences, there are over 20 million children and families battling with the day to day challenges that such illnesses bring into their lives.

 LAUNCH OF THE LITTLE STARS PROJECT

Together we are doing much, but are still only scratching the surface of the need; and far too many people either don’t know of the suffering of children with life-limiting illnesses, or who knowing, don’t care enough to do something to change this. Speaking at conferences is speaking to the converted. It is those outside of the conference who need to be made aware of what is happening and what can be done to help them. Watching the children, families and care programmes  in the Little Stars films  I have realized that it is the stories that the children and families share that will make a difference and could do so much to change indifference into action.

Whether singing “Twinkle, Twinkle Little Star”; showing that they can become chess masters; having fun and giggles with their health care staff ; telling the story of their family; or just smiling and being children, Little Stars films are bright stars that should be seen by everyone from people in the community to senior policy makers. I am looking forward to seeing and sharing each and every film, knowing that it is really these children and their stories that will change peoples hearts. Thank you Mike and Sue for your remarkable mission!

Editor’s Note: Please consider supporting the International Children’s Palliative Care Network by making a donation.

 

 

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