Great Ormond Street Hospital Testimonial

‘Charlie’s Story’ in The Louis Dundas Centre’s, Paediatric Palliative Care Foundation Programme, Great Ormond Street Hospital

The Louis Dundas Centre at Great Ormond Street Hospital is a world-class centre of research, teaching and clinical practice in palliative care for children and young people.

Testimonial from Liz Crighton, Practice Educator Paediatric Palliative Care Foundation Programme Project, The Louis Dundas Centre

‘The Paediatric Palliative Care foundation programme is a new educational programme set up by The Louis Dundas Centre for Children’s Palliative Care at Great Ormond Street Hospital targeting nurses working with children with life limiting and life threatening conditions and their families. It is a two day blended programme with face to face teaching and some additional online learning content to complement the taught elements. The project team have been developing some online materials to introduce paediatric palliative care to course participants. We are particularly keen to put across the family perspective so that participants studying the course can develop some insight into what it is like to travel this journey and how support from palliative care services can influence the lives of children and their families.
Charlie’s story is a beautifully shot and remarkable, moving piece of film describing the journey of Charlie and his parents as they come to terms with his life limiting condition (GMI gangliosidosis) and describing the impact of professional support in their lives. By watching this short film, we hope that participants studying the course will be able to develop an understanding of the some of the joys and challenges of living with a child with a life limiting condition, and start to see the benefits of a multi-agency, holistic approach to care and support for the whole family.
Thank you for allowing us to share this journey with other professionals.’

Charlie’s Story was made possible with the support of Westmead Children’s Hospital Palliative Care Team, please consider supporting the important work of the palliative care team at


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