A Little Magic Unit

A Little Magic Unit – A guest blog from the Russian Children’s Palliative Care Foundation

Things are going slow with little Anastassia but she is making incredible progress – she can eat and swallow solids today though less than a year ago it was predicted impossible. Her family, her beautiful mother are with her every minute, as the Mobile Palliative Care unit of the Russian Children’s Palliative Care Foundation is there to provide support 7 days a week.

Palliative Care for Children can be compared to a little magic unit. Families are created only with hopes for their own happiness and happiness of their children to come. Then a little disruption in kid’s health puts the whole concept of happiness under the doubt of possibility. Only yesterday everything was possible, happiness and promise of a normal life in hand. And when the diagnosis come – suddenly this faith is shaken, the world changes its colors, source of joy is replaced by a constant source of tension, worry, and uneasy questions.

And what palliative care does it – it does not render your kid healthy but it gives what is needed to bring a difficult situation as close as possible to normal. Of course, one perception of normal changes. What happens is that one learns to find joy in small, maybe tiny things and changes that are perhaps left unnoticed by the rest of the world. But they matter to you, your kid, your family. One stands in the center of this change, and that’s where a totally new perspective is granted, always individual because it borders on life-and-death and pain-relief line. Palliative care gives that new perspective – it’s up to the family to take it or leave it. It’s up to the state and foundations to create opportunities for it. And it’s up to the society to accept and respect these situations.

OTHER NEWS

For there is still such a lot to do

Guest Blog by Gail Featherstone Gail Featherstone is the wife of the former British High Commissioner to Malaysia His Excellency Simon Featherstone CMG. Gail authored the delightful children’s book ‘Mr Monty’s Treat’ with proceeds from the...

read more

Great Ormond Street Hospital Testimonial

'Charlie's Story' in The Louis Dundas Centre's, Paediatric Palliative Care Foundation Programme, Great Ormond Street Hospital The Louis Dundas Centre at Great Ormond Street Hospital is a world-class centre of research, teaching and clinical...

read more

Palliative Care Australia

Guest Blog by Liz Callaghan - CEO Palliative Care Australia The Little Stars project shows children all over the world at their most vulnerable. Regardless of where they are, the thing that shines through in these films is the unconditional...

read more

Little Stars – A Dinosaur’s Tail

Guest Blog by Simon Waring A Dinosaur’s Tail: Marmaduke at the Royal Children’s… A dinosaur’s tail seems a frivolous detail to remember about my four-year old son’s Palliative Care, and yet it epitomizes the gentle approach of the Royal...

read more

So much more than end-of-life care

Guest Blog by Janice Eason Kali would not be here today if it would not have been for the help of her pain and palliative care team.  They have been with her since the beginning and are still a part of her life today.  The work they do is so...

read more

Hope for the Best, Prepare for the Worst

Guest Blog by Dr Stefan Friedrichsdorf Pediatric Palliative Care is making sure that children facing a serious illness can live as long as possible, as well possible. While we hope for the best, we prepare for the worst. Pediatric palliative...

read more

Blog de Noel

Guest Blog by Katherine Irene Pettus, PhD Translated by Ursula Barter COMMENT OFFRIR DES SOINS PALLIATIFS AUX ENFANTS DONT LES POSSIBILITES SONT LIMITÉES ET MENACÉS DANS LEUR SURVIE – C’ EST UN APPEL AU ROYAUME DONT NOUS POUVONS TOUS...

read more
Page 3 of 612345...Last »
Subscribe to Little Stars and receive regular news updates!
Your Information will never be shared with any third party.