Filmed in Athens, Greece, the ‘Alexandra’s Story- Romance & Rare Disease’ short film is part of the Little Stars film series and we are grateful to all those who supported the crowdfunding campaign to make filming this story possible.
“Alexandra is, first of all, is a strong willed child.” Stavros, Alexandra’s father tells us.
In South Africa, there are over six million cases of HIV, making it the country with the biggest HIV epidemic in the world.
Naledi Kopane is one of these six million. Living in Bloemfontein, Naledi was diagnosed with HIV when she was only four years old at a time where there was no treatment: A HIV diagnosis meant that death was inevitable.
“I was just told I have six months to two years to live. I don’t feel that way right now, and I don’t look that way.” These words from 33-year old LeeAnne explain her personality and outlook better than any others.
LeeAnne is from Boston, USA and was diagnosed with Cystic Fibrosis when she was two years old, since then her condition has worsened to the point of being inevitably terminal, but nonetheless LeeAnne is determine to persevere.
In Uganda we meet a Wasswa, a child being treated by Dr Henry Ddungu (Uganda) with oral morphine to treat his cancer pain.
We filmed Wasswa in Uganda while we were making LIFE Before Death but felt it was important to highlight that although Little Stars is focused on how palliative care is helping many children accomplish the extraordinary in the face of serious illness, there are up to 20 million children around the world who can not access palliative care. Many of these children can’t access even basic pain relief.
In Singapore we meet Jessica and her family at the Hospice.
“Firstly I want to tell you the story about Jessica” Hendra, Jessica’s father says. “She’s a girl who has a lot of activities, through the school she went for choir, she went for ballet, for piano, she has a lot of activity. But one day we found that her health is gradually getting not so good. In the CT scan they found there is a lump on her mid brain, ah, so that make us very, ah, down.”
‘There is still a lot of joy to be had in life, I think there’s a tendency to look on people with disabilities or people with illnesses and focus on how they’re different or the negative. It’s only societies attitude that limits us and I just can’t believe what a joy Joseph has been for us.’ Fiona Stewart, Joseph’s mother.