Pain Relief in Children’s Palliative Care – Wasswa’s Story

Pain Relief in Children’s Palliative Care – Wasswa’s Story

In Uganda we meet a Wasswa, a child being treated by Dr Henry Ddungu (Uganda) with oral morphine to treat his cancer pain.

We filmed Wasswa in Uganda while we were making LIFE Before Death but felt it was important to highlight that although Little Stars is focused on how palliative care is helping many children accomplish the extraordinary in the face of serious illness, there are up to 20 million children around the world who can not access palliative care. Many of these children can’t access even basic pain relief.

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Little Stars: Japan Prize Finalist

Little Stars: Japan Prize Finalist

INTERNATIONAL VISION

To live in a world where children’s palliative care is acknowledged and respected as a unique service, and every child and young person with life-limiting or life-threatening conditions and their families can receive the best quality of life and care regardless of which country they live in. The International Children’s Palliative Care Network (ICPCN) shares a vision that the total need of life-threatened or life-limited children should be met to encompass physical, emotional, spiritual and developmental aspects of care.

MISSION

Our mission is to achieve the best quality of life and care for children and young people with life-limiting conditions, their families and carers worldwide, by raising awareness of children’s palliative care, lobbying for the global development of children’s palliative care services, and sharing expertise, skills and knowledge.

AIMS

  1. To help services across the world to develop and meet the total care and support needs of life-limited children and their families.
  2. To advocate and raise awareness of children’s palliative care and the specific needs of life-limited or life-threatened children and their families.
  3. To develop a strong ICPCN membership from children’s palliative care services across the globe.
  4. To facilitate communication and sharing of resources, information and research worldwide, and to provide a ‘one stop shop’ for information relating to children’s palliative care.
  5. To campaign for the global development of children’s palliative care services.
  6. To enable the sharing of expertise and information between children’s palliative care practitioners.
  7. To increase the international evidence base for children’s palliative care.
  8. To maximise ICPCN’s resources by developing its fundraising activities in order to discharge its mission.

 

CARE NOW INTERNATIONAL

Contact

Joan Marston
Chief Executive
Email: joan.marston@icpcn.co.za
Phone: +27 (0)822 964 367

Donate

http://www.icpcn.org/donate-to-icpcn/

INTERNATIONAL VISION

To live in a world where children’s palliative care is acknowledged and respected as a unique service, and every child and young person with life-limiting or life-threatening conditions and their families can receive the best quality of life and care regardless of which country they live in. The International Children’s Palliative Care Network (ICPCN) shares a vision that the total need of life-threatened or life-limited children should be met to encompass physical, emotional, spiritual and developmental aspects of care.

(more…)

Little Stars Officially Selected for Breath Of Fresh Air Festival

Little Stars Officially Selected for Breath Of Fresh Air Festival

The Tasmanian Breath of Fresh Air Festival has officially selected Little Stars: Accomplishing the Extraordinary in the Face of Serious Illness in its 2015 Festival line-up.

Little Stars tells the surprisingly life-affirming stories of young people living with life-limiting illnesses. Against the odds these youngsters are making the most of every moment thanks to the support of their loved ones, working in harmony with passionate ‘palliative care’ teams.  (more…)

Jessica’s Story – Children’s Palliative Care in Singapore

Jessica’s Story – Children’s Palliative Care in Singapore

In Singapore we meet Jessica and her family at the Hospice.

“Firstly I want to tell you the story about Jessica” Hendra, Jessica’s father says. “She’s a girl who has a lot of activities, through the school she went for choir, she went for ballet, for piano, she has a lot of activity. But one day we found that her health is gradually getting not so good. In the CT scan they found there is a lump on her mid brain, ah, so that make us very, ah, down.”

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Living with Epilepsy – Joseph’s Story

Living with Epilepsy – Joseph’s Story

‘There is still a lot of joy to be had in life, I think there’s a tendency to look on people with disabilities or people with illnesses and focus on how they’re different or the negative. It’s only societies attitude that limits us and I just can’t believe what a joy Joseph has been for us.’ Fiona Stewart, Joseph’s mother.

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