Palliative Care & Cerebral Palsy – Nadia’s Story

Palliative Care & Cerebral Palsy – Nadia’s Story

Please consider supporting the important work of the Russian Children’s Palliative Care Foundation www.rcpcf.ru

In Moscow, Russia we meet Svetlana Selyukova, Nadia’s Sister “I think we have a regular sisterly relationship. She is annoying, I am annoying. So of course we have conflicts, like everybody else.” She tells us, “we live normally, you know. She’s naughty, but I think that runs in the family. She is very calm, especially if you compare her to other children, she listens and really loves to educate herself.” (more…)

Together for Short Lives

Together for Short Lives

Guest blog:  Lizzie Chambers.  Development Director, Together for Short Lives.

There are an estimated 49,000 children and young people in the UK living with a life-threatening or life-limiting condition that may require palliative care support. This number may seem small compared to the global need, but for each child and their family, the impact on their daily lives is huge.
Together for Short Lives is here to help make sure that every one of these children and young people and their families gets the best possible care whenever and wherever they need it.  (more…)

True love against the odds – Little Stars Greece

True love against the odds – Little Stars Greece

Guest Blog by Mike Hill (Filmmaker, Little Stars)

After visiting 10 countries to capture stories with dozens of families about children’s palliative care you might think that it would be impossible to surprise me.

Not so. In Greece, I found a story – more specifically, a love story – so remarkable that it touched my heart and affected me profoundly. (more…)

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