Marmaduke’s Story – Childhood Cancer

Marmaduke’s Story – Childhood Cancer

“When you realize how uncertain life is , you do begin to appreciate the value or family and friendships and enjoy those moments while you have them because you don’t know what’s around the corner,” Simon Waring.

Marmaduke’s Story highlights the importance of holistic care for all members of families containing children living with potentially life-limiting illnesses. We hear the first hand account of family members reflecting on the importance of children’s palliative care, including home-based care and effective pain control for childhood cancer patient Marmaduke from Melbourne, Australia. (more…)

Blog de Noel

Blog de Noel

Guest Blog by Katherine Irene Pettus, PhD

Translated by Ursula Barter

COMMENT OFFRIR DES SOINS PALLIATIFS AUX ENFANTS DONT LES POSSIBILITES SONT LIMITÉES ET MENACÉS DANS LEUR SURVIE – C’ EST UN APPEL AU ROYAUME DONT NOUS POUVONS TOUS PROFITER

Lorsque le cœur s’ouvre, Dieu peut entrer – « c’est par la blessure que la lumière peut pénétrer en nous. (Rumi).

Le temps de Noël est un appel à tous les chrétiens de réfléchir sur ce que nous appelons l’incarnation – Dieu qui nait en petit enfant destiné à souffrir et à mourir entre les mains de ceux dont Il menaçait le pouvoir. Ce blog est une réflexion sur comment, membre de la communauté, nous pouvons être au service de l’incarnation dans des enfants gravement malades et leurs familles en leur apportant, tout comme les rois mages, les dons de nous-mêmes et nos trésors.

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РОЖДЕСТВЕНСКИЙ БЛОГ

РОЖДЕСТВЕНСКИЙ БЛОГ

Гостевой блог Кэтрин Ирэн Петтус, Доктор Наук

Read in English

КАК ОКАЗАНИЕ ПАЛЛИАТИВНОЙ ПОМОЩИ ДЕТЯМ СТРАДАЮЩИМ СЕРЬЕЗНЫМИ ИЛИ НЕИЗЛЕЧИМЫМИ ЗАБОЛЕВАНИЯМИ ОДАРИВАЕТ НАС ВСЕХ.
Когда сердце разбивается Бог может вступить. “Рана – это место, через которое в тебя входит свет” Руми (Джалаладдин Руми, выдающийся персидский поэт-суфий).

Рождество даёт нам возможность задуматься над тем, что мы называем Воплощением, или Богом рождающемся в младенце, которому суждено страдать и умереть от рук тех, чьей власти он угрожал. Этот блог о том , как мы, члены общества, можем служить Воплощению преподнося, как волхвы дары и самих себя тяжелобольным детям и их семьям.

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CHRISTMAS BLOG

CHRISTMAS BLOG

Guest Blog by Katherine Irene Pettus, PhD

Read in French Blog de Noël

Read in Russian РОЖДЕСТВЕНСКИЙ БЛОГ

HOW PROVIDING PALLIATIVE CARE  FOR CHILDREN WITH LIFE-LIMITING AND LIFE-THREATENING ILLNESS CALLS IN THE KINGDOM AND BENEFITS US ALL

When the heart breaks God can come in.  The wound is the place where the Light enters you,” Rumi.

The Christmas season calls Christians to reflect on what we call the Incarnation, or God taking human birth in a little child destined to suffer and die at the hands of those whose power he threatened. This blog reflects on how we, as community members, can serve the Incarnation in the persons of seriously ill children and their families, bringing gifts, like the Magi, of ourselves, our treasure. (more…)

Kali’s Story – Beyond The NICU

Kali’s Story – Beyond The NICU

“The term palliative care often is perceived by some of my colleagues and some parents as giving up hope or working with the death-and-dying squad.  What they may not understand is that clearly using palliative care means that kids actually live longer and better,” Dr Stefan Friedrichsdorf.

Kali’s Story proves that children’s palliative care can actually save lives that would have been otherwise shortened and demonstrates the importance of continuity of care throughout the lifetimes of children living with life-shortening illnesses. (more…)

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