The ICPCN is the only international organisation that networks individuals and organisations that work in children’s palliative care. We share a vision that the total needs of life-threatened or life-limited children should be met to encompass physical, emotional, spiritual and developmental aspects of care. Our mission is to achieve the best quality of life and care for children and young people with life-limiting conditions, their families and carers worldwide, by raising awareness of children’s palliative care, lobbying for the global development of children’s palliative care services, and sharing expertise, skills and knowledge. We believe that no child with a life-limiting condition should suffer unnecessarily and that palliative care is a professional and compassionate response to a child’s suffering.
BLOEMFONTEIN , SOUTH AFRICA
Sunflower Children’s Hospice was established 15 years ago as a response to the increasing number of children with HIV and AIDS at that time, as well as many children with a variety of life-limiting conditions.
The Hospice has cared for over 5 000 children in this time through home-based care; Day care and care in Sunflower House. It works closely with the District Hospital ; and provides a variety of training courses for families, professionals, primary carers and community caregivers.
Short Film 1 – ‘Value Every Life’ introduces us to children’s palliative care and hospice. It features Joan Marston, Chief Executive of the International Children’s Palliative Care Network, and the staff and children of Sunflower House in Bloemfontein, South Africa.